"No one is going to give you $3m and say, 'Here you go, cure your boy.'"

19-month-old Michael Pirovolakis has SPG50, an ultra-rare genetic disorder that will eventually paralyse him, but his parents refuse to give up on his future.

For more on this exclusive story, click here: https://aje.io/38h3l

Check our website: http://www.aljazeera.com/

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